Dementia Care shouldn’t be faced alone: how Family and Friends can help Carers

Caring for a loved one with Dementia is physically, emotionally, and mentally exhausting. Yet many friends and relatives don’t fully appreciate the immense burden Carers face. Many Carers are left facing caregiving responsibilities on their own.

Over a third of Dementia Carers report a decline in their own health, and 94% suffer from sleep deprivation. They are more than twice as likely to develop depression—one of the biggest risk factors for Dementia—and are at increased risk of cognitive impairment themselves.

The relentless demands of Caregiving can lead to severe stress, isolation, and, far too often to total exhaustion—commonly known as ‘Carer burnout’. Carer Burnout occurs when long-term emotional and physical stress and exhaustion leaves a Carer feeling overwhelmed, hopeless, and emotionally drained. It can result in resentment, frustration, and a sense of losing control. Without proper support, many Carers will struggle to keep going and the quality of Care the Person with Dementia receives will suffer as well.

This is where family and friends can make a real difference. Small gestures can go a long way in easing the burden and helping to prevent Carer burnout:

  • Offering a listening ear, acknowledging the Carer’s efforts, and showing kindness can provide much-needed relief.

  • Learn as much as possible about Dementia and Dementia Caregiving and offer to brainstorm on solutions to caregiving issues a Carer may be having. Avoid giving advice assuming the Carer hasn’t already tried something  you are suggesting. This can feel dismissive rather than helpful. Build an understanding of what is happening instead.

  • Practical support is invaluable. Instead of a vague “Let me know if you need anything,” offer something specific: “Can I do your shopping?” or “Would you like me to sit with your loved one while you take a break?” Regular respite is crucial, as even a short time away allows Carers to recharge, making them better able to cope. Simple acts such as bringing a meal, helping with housework, or running errands can make a significant difference.

  • If you’re able, offer to Care for the Person with Dementia for a while so the Carer can have time for themselves. When visiting, come prepared with activities, such as taking a walk, doing a simple crafting project together, or reminiscing over a photo album.

It helps to understand the communication challenges that Dementia present. Asking Carers what to expect and how best to interact with the Person with Dementia can make visits more positive for everyone.

Supporting a Carer isn’t just about easing their workload—it’s about recognising their struggles, offering practical help, and ensuring they don’t feel alone in this journey. Your support, however small, could make all the difference.

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